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A Face for Picasso: Coming of Age with Crouzon Syndrome Hardcover
Supplier:
Macmillan
Author:
Ariel Henley
Format:
Hardcover
Pages:
400
Publication Date:
11/02/2021
Language:
English
Reading Level:
Adult
Publisher:
Farrar Straus Giroux
Product Name:
A Face for Picasso: Coming of Age with Crouzon Syndrome Hardcover
ISBN:
125089557X
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Details
I am ugly. There's a mathematical equation to prove it.
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.
Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.
Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.
Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.
Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.
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